A diagnosis of PAH associated with scleroderma can be shocking, frightening, and overwhelming. But you’re not alone—there is support available from people who know what you are going through.
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Association
Their mission is to extend and improve
the lives of those affected by pulmonary
hypertension, including people with PAH
associated with systemic sclerosis
A nonprofit dedicated to
supporting people with
scleroderma through education
and research
Founded by pulmonary
hypertension activists to create
awareness and support research
on behalf of families, caregivers,
and medical professionals
An educational resource provided by Johnson & Johnson for people living with PAH. It can help you better understand the disease and how it can impact your life, and it has tips for dealing with it in the short term and long term
Started as a cycling team, a charity that seeks to raise awareness of pulmonary hypertension, fund medical research, and provide patient services
Ask Your Rheumatologist About PAH
Talk with your rheumatologist about getting screened for PAH every year.
Get started